Bitter with a a LOT of Sweet (at the end)

Liam's been in the hospital since Thursday. He had 17 seizures/spasms in 4 minutes on Thursday night so they gave him Diastat. The medication is a gel that is VERY expensive ($30,000 per vial) and there is nowhere in this state that carries it so it had to be shipped from Florida and should arrive at our house today (we had to promise there'd be someone there to sign for it) then DH will bring the medicine up here to the hospital so he can start on it. In the meantime, they've stopped the Phenobarb after the seizures the other night and started him on Keppra. The Keppra has wiped him out so he's slept most of the time. In addition, he had a MRI yesterday that he had to be sedated for (they used pentabarb) so the combination of the sedative and the keppra are keeping him pretty sleepy. He only wakes up to eat or cry - I miss my smiley little man - haven't seen a smile in almost 2 weeks, now. He is having a hard time recovering from the pneumonia b/c the medication is knocking him out and he's not coughing it out.

So...alot to deal with. The treatment for these seizures is a very strong steroid which will further suppress his immune system which is VERY scary for us because he's currently on his 12th hospitalization since leaving the NICU in May and making him more susceptible to anything scares the heck outta me. In addition, we'll have to take him to the doctor weekly for blood pressure monitoring because the medicine can cause hypertension - if he does develop hypertension, they'll treat that with medication. Anyway...just praying at the moment and hoping to see my baby boy smile again, soon!

The good news is HIS MRI IS NORMAL!!!!