Now We Know

Just wanted to thank everyone for the thoughts and prayers for Liam. They are truly appreciated. Right now, we're a bit shell-shocked and reeling from all this. I know everyone has a lot of questions, as do we, so I'll try to answer them as we get more information.

As confirmed by the EEG this morning, Liam is having Infantile Spasms. Compared to grand mal seizures, they don't LOOK that bad, however, they are more devastating. Most children with IS have some degree of mental retardation. There is a chance he can outgrow them but a very strong chance that this diagnosis will be replaced with another seizure disorder diagnosis.

What we know right now is that he'll be here for at least the next couple days or so. They have to order the medication and it has to be shipped here - should be here tomorrow. They have to see how he is going to react to the medication and we have to learn to give the shots ourselves before discharge. He will get the shots for at least the next 12 weeks. He needs to have an MRI but they can't do the MRI until he has had antibiotics for 24-hours to treat the pneumonia so they can safely sedate him. And, that is the gist of what we know.